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Act Today: Ask Congress to Support Patients

With the release of the President’s FY 2017 budget, the Congress now begins its work to appropriate federal spending. As part of this work, it appropriates dollars for the C.W. Bill Young Cell Transplantation Program (Program), which Be The Match operates through a contract with the federal government. It also appropriates dollars for the National Cord Blood Inventory (NCBI). Dollars for both programs help increase the number of marrow donors and cord blood units on the national Be The Match Registry.

During the last five years, funding for the Program and NCBI has remained relatively flat. Every dollar allocated by the Congress goes to increasing the number of donors and cord blood units on the registry, helping patients navigate the complexities of the health care system when preparing for transplant, supporting research to discover and apply the best therapies, and improving patient outcomes. Thus, we are asking the Congress to modestly increase funding for 2017 to help improve the diversity of the registry. 

We need your help to encourage the Congress to maintain its commitment to individuals who need a life-saving bone marrow or cord blood transplant by increasing the funding levels and expanding the registry. Take action now! 


Medicare Moves to Expand Coverage for Bone Marrow and Cord Blood Transplants

In response to the request by Be The Match, the American Society of Blood and Marrow Transplantation (ASBMT) and The Center for International Blood and Marrow Transplant Research (CIBMTR), the Centers for Medicare & Medicaid Services (CMS) issued its decision to expand Medicare coverage for bone marrow and cord blood transplants to three new diseases -- sickle cell disease, multiple myeloma and myelofibrosis. 

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Advocate Profile

Steven was diagnosed with myelodysplastic syndrome (MDS) in March 2013. His disease quickly evolved into acute myeloid leukemia (AML), and he needed a marrow transplant to save his life. Steven was lucky enough to find four 10 out of 10 matches on the Be The Match Registry. “I can’t tell you how lucky I felt to have found my match,” Steven recalls. 

Later that same year, Steven received his life-saving bone marrow from a young man in Germany. Throughout his transplant journey, he tried to maintain a sense of normalcy.

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