In honor of Nolan’s 2nd transplant anniversary, and to help raise awareness about signing up to be a donor, I am participating in another Be The Match Fundraiser! Our goal is to raise $1,000 This could potentially add 10 new people to the registry and save lives!
Unfortunately, given the current makeup of the Be The Match registry, the likelihood of finding a match for patients in need of a transplant ranges from 23-77% depending on patient ethnicity. This means there are several people waiting for their “perfect” match, waiting for their second chance at life. Your donation can help save lives by adding new people to the registry!
Here is a brief overview of Nolan’s story:
At barely 4 months old, after several weeks of hospital stays, high fevers, many tests, and multiple blood and platelet transfusions, our son received the diagnosis of familial hemophagocytic lymphohistiocystosis (HLH). His only cure was a bone marrow transplant. We were scared and did not know what it all entailed. We quickly learned that in order for our son, Nolan, to receive a transplant he would need to have a “perfect” or “good” match on the registry. There are times when there is not a good enough match found on the registry. This leaves the patient waiting until someone registers to donate that matches their genetic makeup. HLH is extremely aggressive and we were told that a transplant needed to happen as soon as possible. Be The Match worked with us to help share our story and try to find Nolan a match. Fortunately, Nolan had a match. It was a cord blood match. A family, in Italy, donated their daughter’s cord blood after she was born. Their decision saved Nolan’s life!
It saddens me when I hear of someone, especially a child, who passed away as they were waiting for their “perfect” match to sign up and be on the registry. Nolan’s two year transplant anniversary is approaching and we wanted to do something to pay it forward.
Please join me in reaching our fundraising goal. Your donation is tax-deductible and gives hope to those desperately waiting for their second chance at life. Now let’s reach this goal and help be the cure for those who need it!